Key Facts

Framework

  • Investigator-initiated registry hosted by non for profit organization (UNEV)
  • Academia-driven (supported by GA²LEN, EADV and WAO, endorsed by GA²LEN, EAACI and EADV Task Forces for Chronic Urticaria)
  • Cooperation with stakeholders (industry, patient organizations, payers, health authorities)
  • Open to all urticaria-treating physicians
  • International approach: The registry will be launched initially in Germany, Spain, France, Italy and UK. Later it will be extended to the rest of Europe, USA, Canada, Brazil, India, China and Japan, etc.

Key Features of CURE

  • Web-based-registry
  • Basic data (Physician module) – entered once (30 minutes)
  • Follow up data (Physician module) – entered every 6 months (15 minutes)
  • Patient module (in preparation)

Recruitment Plan

  • 1st year: 250-500 new patients
  • 2nd year: 500-1000 new patients
  • 3rd year: >1000 new patients

Contact

Chronic Urticaria Registry

Charité – Universitätsmedizin Berlin
Charitéplatz 1, D-10117 Berlin

E-Mail: undefinedkarsten.weller(at)charite.de

CURE is supported by the following institutions, societies and non-profit organizations:

  • UNEV-Uritcaria Network e.V.
  • Allergie-Centrum-Charité
  • WOA-World Allergy Organization
  • EADV - European Academy of Dermatology and Venereology

CURE is supported by the Task Forces for Urticaria of the following institutions:

  • GA2LEN - Global Allergy and Asthma European Network
  • EADV - European Academy of Dermatology and Venereology
  • EAACI - European Academy of Allergy and Clinical Immunology