About CURE

Background

Chronic urticaria is a highly frequent allergological and dermatological disorder. Many chronic urticaria patients are affected for years and exhibit a severe impairment of their quality of life. As of now, the epidemiology, duration, course, response to treatment and underlying causes of chronic urticaria are still ill defined. While a registry would be an appropriate tool to assess these features, this was, until recently, not available. Therefore, the Chronic Urticaria Registry (CURE) was set up as an academia-driven, open-ended registry for all subforms of chronic urticaria (chronic spontaneous urticaria and chronic inducible urticaria) to assess features which are, as of yet, not available. CURE is investigator-initiated and hosted by the non for profit organization Urticaria Network e.V. (UNEV) with support by GA²LEN, EADV and WAO. In addition, it is endorsed by the GA²LEN, EAACI and EADV Task Forces for chronic urticaria. The registry is open to all urticaria-treating physicians and centers.

 

Objectives

CURE aims to collect quality, real-life data on chronic urticaria patient characteristics, the course of disease, underlying causes, comorbidities, treatment responses, quality of life impairment and health care costs.

 

Core variables of CURE

  • Demographic characteristics
  • Duration and course of the disease
  • Frequency of angioedema
  • Underlying causes
  • Comorbidites
  • Triggering factors
  • Treatment response
  • Disease activity
  • Disease control
  • Quality of life impairment
  • Direct health care costs
  • Absence from work/school

Contact

Chronic Urticaria Registry

Charité – Universitätsmedizin Berlin
Charitéplatz 1, D-10117 Berlin

E-Mail: undefinedkarsten.weller(at)charite.de

CURE is supported by the following institutions, societies and non-profit organizations:

  • UNEV-Uritcaria Network e.V.
  • Allergie-Centrum-Charité
  • WOA-World Allergy Organization
  • EADV - European Academy of Dermatology and Venereology

CURE is supported by the Task Forces for Urticaria of the following institutions:

  • GA2LEN - Global Allergy and Asthma European Network
  • EADV - European Academy of Dermatology and Venereology
  • EAACI - European Academy of Allergy and Clinical Immunology